We went to the Endocrinologist today and it is his opinion that Zoe does in fact have Russell-Silver Syndrome. He also feels that Zoe should take Growth Hormone therapy. However, if we do decide to do that, it won't be until she turns 2. Most kids who are born Small for Gestational Age will catch up to 'normal' growth by the time they're 2. If they haven't caught up by then, that's when Growth Hormone Therapy is started. The regiment would include daily injections of the Growth Hormone until she gets into her later teen years. It's a very small needle, similar to insulin shots that diabetics get. The doctor said that it is not even painful for the kids. We had a discussion about potential side effects and Growth Hormones are much more advanced and safer now than they were back in the 80's when there was a dire chance for unfavorable side effects. He made it seem like it's pretty safe now. But in the end we have a little over a year to watch her growth and do lots of research before we have to make a decision.
Feel free to check out The Magic Foundation's website. This is the foundation dedicated to growth related disorders, including Russell-Silver Syndrome.
Wednesday, February 13, 2008
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That is great information! Who is your endocrinologist?
ReplyDeleteOne of Rob & Andrea's boys has a growth syndrome (I don't remember the exact name of it)...she may be a good source of info if she's looked into therapy.
ReplyDeleteAs long as she does the grunty growl noises I think she'll be fine. ;)
ReplyDeleteFYI, one of my favorite friends sells growth hormones for children, let me know if you need a resource. xo
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